Halifax – Researchers are hoping to better understand what impact restricted family presence has had on pediatric intensive care unit (PICU) patients during the pandemic. It is hoped that results of the national study will help design family presence policies that can be adapted in the event of future threats.
“It is terrifying to have a critically ill child – to see them suffer, to worry about losing that child, and to be in a place that is so unfamiliar and where something is constantly beeping, often signalling that something is wrong,” says parent partner Martha Walls. “In our experience as parents, one of the most important ways of coping with the great stress of the PICU is to have family support.”
Family presence is essential to family-centred care in PICUs, where children have a high risk of death and disability. PICUs generally value and promote family presence. However, to curb the spread of COVID-19, policies were implemented that restricted family presence in PICUs.
“I can’t imagine the fear of families whose children need intensive care. They are under incredible stress that is usually improved only by being with their child, able to touch them and participating in their care,” says the IWK’s Dr. Jennifer Foster, lead investigator.
Foster and her research team aim to develop evidence-based guidelines for consistent implementation of family presence in PICUs across Canada, in any context.
“The pandemic was a time when restrictions to family presence had to be implemented quickly to try to minimize the risk of the healthcare system collapsing” says co-lead investigator Laurie Lee, University of Calgary. “But now we have the opportunity to use these restrictions as a case study in what happens when family presence – usually highly promoted and supported in a PICU context – is significantly restricted.”
“Patient and family-centered care advocates recognize the need for children and their families to be together during a PICU admission,” says co-lead investigator Dr. Jamie Seabrook, of Brescia University College. “Our goal is to create consensus statements, informed by stakeholder experiences and priorities, which will enable PICUs to optimize family-centered care in any context."
“As a youth, knowing that your values and ideas could potentially influence future
policies can be very empowering and so I think hearing about this project is heart-warming
for many current and previous patients,” says Neda Moghadam, Family Leadership Council
co-chair at IWK Health. “Given that we are experiencing a global pandemic, most patients
may feel guilty sharing any negative response to the family restriction policy, but
the mere existence of this study demonstrates that their stories are important to
help us move forward.”
The funding from the Canadian Institutes of Health Research (CIHR) will enable the team to interview children and youth admitted to the PICU about their experiences and engage with stakeholders to develop guidance through consensus statements. Lead researchers for the project are at IWK Health and Dalhousie University in Halifax NS, Alberta Children’s Hospital and University of Calgary in Calgary AB, and Brescia University College in London, ON. In the future, the team will be able to honour their commitment to family centered care by enabling meaningful family presence in a safe and responsible manner.
About IWK Health
IWK Health is the Maritime region's leading health care and research centre dedicated to the well-being of women, children, youth and families. In addition to providing highly specialized and complex care, the IWK provides certain primary care services and is a strong advocate for the health of families. The IWK is a global leader in research and knowledge sharing, and a partner in educating the next generation of health professionals. Visit www.iwk.nshealth.ca for more information.
About Brescia University College
Brescia University College, Canada’s women’s university college, is affiliated with Western University. The 1,600 women registered as either full- or part-time students at Brescia study a wide variety of subjects in the Schools of Behavioural & Social Sciences, Food & Nutritional Sciences, Humanities, and Leadership & Social Change in an empowering, compassionate, student-centred and invigorating environment. Degrees are granted by Western. As a Catholic University College, Brescia welcomes students from all backgrounds and values diversity. For more current and archived news, a listing of faculty experts, and photos please visit our Online Media Room, at brescia.uwo.ca/communications/media_relations.